Health Professionals and Researchers with specialised knowledge and experience in rare and genetic diseases (self-nominated)
1. Name of Health Professional/Researcher and Contact Details
2. Rare and genetic diseases - areas of special interest
3. Researchers - please provide information on the research you are conducting relating to your areas of special interest. If yes, please provide details
4. Patient Services - Do you belong to an organisation that has a multidisciplinary clinic or service for a rare and/or genetic disease?
5. Are you available for telehealth consults?
6. Do you provide transitional planning and care for patients from paediatric to adult health care services?
7. Linking and Supporting Health Professionals and Researchers
8. Medical Specialists - Other organisations provide details on Health Professionals with a special interest in rare and genetic diseases. Are you happy for your details to be provided to:
9. If there is any additional information you would like to include that relates to increasing awareness of rare and genetic disease and access to support and treatment.
Thank you for completing our survey